Another great report for all of you. Brad and I visited with Haley and Trent during the 9:00pm visitation, and she is doing so well.
The ventilator was removed today, and the trach was inserted (Realized I told you all last night that Haley was having a trachea inserted....I was clearly tired and didn't catch that until this morning.).
Now the ventilator is gone she can move her lips and show her teeth. The neck collar is still on and not sure if it will remain or not. As she gets stronger, the tube with the trach will be replaced with smaller ones. Trent said hopefully the tube will be small enough in a couple weeks that wind will be able to pass the tube and allow her to whisper.
Finally, with some help from the ALSAC/St. Jude video team, the mp3 player is loaded. Haley can feel the buttons and listen to as she wants between visits. She was very excited to finally get this. She received another gift today, a new powerful fan with a remote control. She has a new gown with a pocket in the center, so she can stash the fan remote and mp3 player. She's getting set up.
Liz and I had pictures printed for the surgeons today. This will allow them to see Haley's features with different expressions. Trent was looking at them and said, "Dang baby. You're fine." In true Haley style, she curled her lips up as to say, "Uuhhm hmmm, you know it." When Haley's bandages are removed, she will have pictures from IL to AL to see all of your smiling faces who have been praying for her. We also put a picture in her room of her and Trent from their wedding shower at Ricatoni's in a frame that says, "Live & Laugh".
I asked her if the nights go by fast, and she shook her head no. She kinda shrugged her shoulders when I asked if she was sleeping good.
Her attitude is amazing. Trent was telling her blessed she is, and she was steadily nodding her head. Her spirit is amazingly strong.
At one point, she puckered her lips up for Trent to kiss her. When he did, she puckered up again for more. Brad and I took our cue and told them we would leave, so they could make out. We did leave, so they can just have some time alone because that is so important. When we told Haley bye, she mouthed, "I love you. Thank you." It was so great to see her lips move!
Keep praying for Haley, Trent, and her parents. The major surgery is Thursday, and hopefully everything will go great.
Good night,
Christie
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